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Chapter 12 Alone in the Lifeboat(Excerpted from Marijuana Rx: The Patients' Fight
for Medicinal Pot by Robert Randall and Alice O'Leary.
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| Summary: In 1977
Robert Randall was the only American receiving legal supplies of marijuana for medical
purposes, the result of a legal petition in 1976. Federal agencies wanted Randall to keep
silent about this unique arrangement but Randall knew many others could benefit from
medical access to marijuana. He began speaking out at every opportunity . . . and there
were many. But Randall's outspokeness would put him at risk. Federal authorities
threatened to take away Randall's legal access to marijuana so he appealed to the White
House for help. At right: Robert Randall, late 1976. |
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| As the dramatic and eventful Bicentennial year was drawing to a close, my
story virtually exploded upon the American consciousness. In addition to hearing from
ordinary citizens with serious ailments I also heard from some celebrities. Cathy Douglas,
the wife of Supreme Court Justice William Douglas, called to enlist my help in securing
legal supplies of marijuana for a cancer patient. (The patient died before we could
organize the effort.) I had some conversations with B.F. Skinner, the noted author and
behavioral scientist. Dr. Skinner suffered from glaucoma and conventional medications were
failing to control the disease. He tried marijuana, illegally, and felt it provided some
relief. But the Harvard professor was uncomfortable using the illegal substance and could
not find a way to adapt the substance into his rigid schedule of activities a
behavioral scientist unable to alter his own behavior. The media blitz was intense and sustained. In the three months following my acquittal I spoke with countless reporters and radio stations. I traveled to New York to appear on "Good Morning America," gave a press conference in the fabled Playboy Towers Hotel in Chicago, posed for People Magazine, and taped numerous other TV segments. I was invited to several state legislative sessions where I testified about the medical benefits of marijuana and displayed my small plastic vials filled with government joints. Legislators would jockey to have their picture taken with "Americas only legal pot smoker." In February 1977 I taped a segment of "To Tell the Truth," a long-running TV game show in which celebrities ask questions of three panelists in an effort to determine which one has the unusual occupation or talent, in my case "Legal pot smoker." Not surprisingly I fooled no one. The celebrities, most notably Nipsy Russell and Peggy Cass, showed a sophisticated knowledge of marijuana. Even the elegant Kitty Carlisle was able to select me from the panel. Robert Randall wasnt exactly a household word but my situation was well known. Invariably I would hear, "Oh yeah! Youre that guy, that guy with the eyes." It became a running joke with Alice and me as we made our way through those incredible first months. The atmosphere was bright with promise. Sanity, it seemed, could prevail. There was a new president, Jimmy Carter, whose young staff was peppered with marijuana smokers. Keith Stroup knew many of them and was optimistic that changes would come, and soon. He spoke in glowing terms of Carters nominee for drug policy advisor, Dr. Peter Bourne. Throughout the latter part of my ordeal in 1976, Keith had often advised me to contact Bourne, who was then associated with the Drug Abuse Council, a D.C. think-tank funded by the Ford Foundation. But I was already working with another individual at the Council, Jane Silver, and I wasnt sure what Bourne could do for me in that turbulent year of 1976. Now, with such a contact well-placed in the White House, it seemed the possibilities for expansion of research and medical access to marijuana were opening like the pedals on a rose. This impression was reenforced by an editorial that appeared in The Washington Post just ten days after my acquittal entitled "Drugs and Public Policy." The December 6th editorial decried the lack of research into marijuanas medical use, cited my case specifically, and concluded:
We were so overjoyed with our success, so confident of a new day dawning, that we didnt see the storm clouds gathering. Another editorial, this one across the continent, would issue a different opinion in the early days of 1977. Appearing in the Spokane, Washington Chronicle under the headline "Pot Users Try New Angle," the editorial noted, "Claims that use of marijuana retards glaucoma, an eye disease that usually leads to blindness, is the peg on which the National Organization for the Reform of Marijuana Laws (NORML) will hang its hat in a national campaign to decriminalize use and possession of the drug." The editorial would conclude with an ominous warning. "Opponents to decriminalizing marijuana should go to work immediately on building up a strong case against NORML." Within six weeks of the decision in my case the battle lines were drawn in the war for medical marijuana. Those lines continue to this day, dug in like the weary soldiers of World War I facing an endless barrage of attack and counterattack. Caught in the no mans land between warring factions are the patients, still waiting for sanity to prevail. On March 3, 1977, I appeared on the "Tomorrow Show" with Tom Snyder. The Snyder program, which followed Johnny Carsons immensely popular "Tonight Show" on NBC, had a loyal following, especially in the West where time zones presented the show at a more reasonable hour. Snyder was a skillful and playful interviewer. We connected well and the show sailed along smoothly. By that time I was accustomed to "Well Bob, how about lighting one up for the cameras?" I still rebelled against needless smoking but, under the glare of the TV studio lights, my pressures were climbing fast. When Snyder cajoled me to "light one up," I did so. It was the first time I smoked "live" on camera. When I began my journey through the maze of federal bureaucracies I was focused on Robert Randall but as my story seeped into national consciousness in 1976 I heard from others with numerous afflictions. At first it was just a trickle of correspondence and phone calls. The dual victories of November 1976 legal access and acquittal turned the trickle to a torrent. The Snyder show amplified the interest even more. Alice and I responded to each call or letter with increased despair. There was a growing sense of obligation and responsibility to others but what to do? The logical answer was to file more petitions, to try and do for others what had been done for me. But the circumstances were vastly different. Realistically we could not mount the type of effort that had been successful in my case. It was costly, time consuming, and far too dependent upon the petitioner doing an extraordinary amount of "legwork." It would be better, we reasoned, if we organized the patients into a concerted effort. On April 26, 1977, we filed a petition with U.S. Attorney General Griffin Bell that was signed by 13 seriously ill individuals including a schoolteacher from Ohio, a craftsman from Missouri, a prisoner from Florida, and a cancer patient from Pennsylvania. Also among them was my old roommate from Johns Hopkins, Vincent Mustachio. We asked the Attorney General to schedule open hearings to consider the reclassification of marijuana and allow its medical use. In the Spring of 1977, such an action by a disperse group of individuals, generated another round of media attention and shifted the focus beyond me. Local news stories appeared wherever a petitioner happened to reside. In Kansas, The Wichita Eagle featured the story of 62 year-old Ara Cron, a glaucoma patient and retired schoolteacher, who lamented she was "too old to get the drug" but pleaded for an opportunity to try it. She left it clear the opportunity did not necessarily have to be legal. She cited a long family history of glaucoma and her concerns about risky surgery. Aras story would, in fact, generate a "donation" of marijuana from a concerned citizen. She tried smoking the drug and her husband Gerald measured the results with a Schiotz. They were impressive, dropping from 40+ mm of pressure to readings in the high teens. This was enough to convince Aras doctor who began pursuing an IND application of his own and was pleased with the cooperation promised by the FDA and NIDA. It seemed my case was opening the doors for others. But it was also beginning to place me at some peril. v v v v May 13, 1977 "Youre not going to like this, but I cant give you any more marijuana." Merritt did not mince his words. I was just back from California where I had participated as a panelist during the Medical Marijuana session at the National Conference on Drug Abuse (NCDA). The session was particularly well attended. There was a great deal of interest in Americas Only Legal Pot Smoker and the conference received a tremendous media push as a result of my presence. Among the other panelists was Dr. Robert Peterson, the NIDA official who once told me "youll never make it through the bureaucratic layers." The NCDA crowd was clearly sympathetic to me and I was highly critical of NIDAs failure to aggressively research marijuanas therapeutic applications. Peterson was forced to defend a policy that he obviously felt was shallow and stupid. After the panel, as I was being ushered away by a conference organizer, Peterson cornered me for an instant and asked how I could manage to travel to San Francisco on just a weeks supply of marijuana. In fact, I had a nine day supply. Ever since my appearance on the "Snyder" show, there had been discussions about "Randalls take home supply" and increased mobility. High-up officials were annoyed with my public exposure and growing notoriety. The bureaucrats had ignored the press rush of last fall, assuming my celebrity status would fade. But now it was obvious that I was doing everything I could to flame the fires of interest in medical marijuana. There were those appearances on TV, game shows, travel to legislatures everywhere, and now I was appearing at conferences like an expert! On May 12th , as I made the press rounds in Los Angeles, a little known committee of the FDA, the Drug Abuse Research Advisory Committee (DARAC) was meeting in the Parklawn Building. It had "invited" Dr. Merritt to "discuss" his research program but the discussion quickly shifted to the my personal conduct. After considerable talk, Merritt was asked to leave the room and a secret vote was held. Merritt was then informed that I would no longer be authorized to possess any more than a daily supply of marijuana. When Merritt protested that such a system would inconvenience him as well as me he was told, quite bluntly, that DARAC could revoke Merritts research license if he failed to cooperate. Moreover, there were criminal liabilities that could be invoked. Merritt delivered the news to me the next day. I immediately called Ed Tocus, my contact at the FDA. Tocus was not surprised at the call but he was taken aback at the extent of my knowledge. With the delivery of Merritts bombshell, I had started putting the pieces together. While in California I had telephoned Dr. Hepler and learned of a "committee that was making some inquiries" about my "personality traits." Not surprisingly, Hepler refused to answer such inquiries. The committee had called Hepler shortly after the "Snyder" show. I asked Tocus outright if it was the same committee that had met with Merritt and Tocus confirmed it was. "Under the DARAC policy of daily supply Id become a medical prisoner of the District of Columbia." I spoke slowly and with a measured tone. I wanted to be certain that Tocus answered the next question without any emotional overtones. "Do you expect me to stay in Washington until I go blind?" There was barely a pause. "That, I believe, was the intention of at least some committee members in voting to restrict your supply." Tocus reply was delivered with such calm that it shook me to the bone. "Look, I have three joints left. Thats enough for this afternoon. Today is Friday and Merritt has made it clear he will not be available this weekend. So, if provisions are not made to resupply me before this evening, you, DARAC, and the FDA will be in court on Monday morning." v v v v I had no way of backing up such a threat. I was still in debt to my lawyers from the criminal case and there was little hope of finding anyone else on such short notice. But the bluff worked. My supplies were reinstated. DARAC had seriously overstated its power. As an advisory committee they could only "recommend" policy to the FDA and the regulations did not allow policy recommendations to become true policy until the minutes were published in the federal register and public hearing was held. That was months away. The FDA was acting in a totally improper manner by implementing DARACs "recommendation" so quickly. Their braggadocio had been as bold as my own. But the game was far from over. In mid-April, sensing that my days as Americas Only Legal Pot Smoker were numbered, I had decided it was time to play the Bourne card. Since entering the White House Dr. Bournes sensitivities to marijuana users had been considerably lessened. As President Carters drug abuse expert and special assistant to the President for Health, Bourne seemed to be leaning towards continued spraying of the herbicide Paraquat on Mexican marijuana plants. But he had remained silent on the matter of marijuanas medical use and this gave me some hope. My purpose in writing Dr. Bourne in April 1977 was to inform him of our petition effort which Alice and I had organized with the other patients. I was careful with my words. "I have had limited desire to attack those agencies responsible for my access to marijuana." I wrote. "While the system of marijuana management itself seems ill conceived and mal-administered, I did receive a measure of justice. I had reason to believe, for a time, that adjustments would go forward." Later in the letter I would write,
On June 6, 1977, Dr. Bourne responded. His letter was very clear.
Bourne then elaborated on the need for research and the problems with the cannabinoid eyedrop. Finally he got to the heart of the matter.
Dr. Bourne was threatening to use my medical need in an attempt to constrain my right to speak. It was medical blackmail. Bureaucrats can threaten and bluster through procedures and phone calls, but are seldom reckless enough to issue them in hard black and white. Within three days of the Bourne letter came a second blow. As Bourne had noted, there was some concern about my status with respect to legally possessing marijuana. My lawyers had appealed to the U.S. Attorney General for a statement of immunity and the appeal was forwarded to the Drug Enforcement Administration. The drug agency refused to extend such immunity. The warnings were now unmistakable. Either I could keep quiet and retain my marijuana or I could talk and my marijuana would be taken away. My sight or my right to speak. The research program at Howard University was becoming a battleground on which the government and I were playing out the game of constant escalation. Continued ..... |
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